Sunday July 20 - Dreamworld

Sunday July 20 - Dreamworld
What a great day at Dreamworld. We left at 9.40am and after an hour in the taxi we arrived and went on everything we could.

 Which way first?

 A bit scary

 When can I get my license Mum?

 Sky coaster

 Drenched after the river rapids

 Yummy chicken, rice and cucumber for only 60BAHT

 Bug's cousin

Dumbo?

The stem cells are working Mum!

This way to the dunny!

On the train

Back to the'hotel' in a taxi after a very busy and action packed day at Dreamworld.

I took Dad to the pub for his dinner then skyped mum and off to bed for stem cell injection number 5 tomorrow afternoon.

Take care and love to you all. - Flynn and Frazer

Saturday July 19 - Zoo Day

Saturday July 19 - Zoo Day
What a busy day Flynn had as we started with Pt with Beeand then OT with Sher followed by acupuncture with Dr Mozzie and then on a train and taxi to the Zoo.We took a lot of video which we will show when we get home.

 Hungry Hippo's

 Check out the gob on that, it's a bit on the nose!

The bear behind me is drinking out of a red water bottle.

Lucky I can run fast.

They have their eyes on my snack bar

Off to the MBK centre in a Tuk Tuk

Great time at the Zoo and then went on train to Emporium to get Dad some dinner, then back to the hospital to eat my lovely Pork, carrot and cucumber dinner. Cake and bed ready for a big day at Dreamworld tomorrow.

Love Flynn and Pappa

Friday July 18 - Busy day

Friday July 18 - Busy day
A very busy and effective day for Flynn with some very challenging behaviour - at times. Flynn started the day with aquatic therapy and Nit was his therapist.

Is that a shark?

DOING THE CRAB AT OT

At OT Flynn decided to continue coughing and occasionally spitting so I got him a mask which stopped the challenging moment.

Cher dropped some beads and buttons which caused excitement on the floor.

 Flynn had it all under control

High Fives all round!

After OT and PT and some skyping with Mummy, Patto and Tess, Flynn was dying to get to the pub and ealthough there was some challenging behaviour exhibited by Flynn, I decided that ther was more good behaviour than bad and took him to the pub - The Robin Hood. 

On the way to the pub

Pineapple Juice at the pub with Dad

A feast at the Pub

Off to the  zoo tomorrow after therapy.

Thursday July 17

Thursday July 17
Today Flynn had yummy banana cake and ham for breaky and then off to aqua therapy with Mia which was a lot of fun, however, Flynn was naughty and drank the pool water. At 11.00am Flynn had acupuncture with another 14 needles in his head and then OT at 1.00pm with Joon. 

Check out my lovely Tulip!

Flynn and I jumped on the train to the MBK centre to exchange mum's handbag as it was dodgy and we had some Macca's chips for a treat and then back to the Hospital. to skype Mummy and the kids before they went to bed. Then off to the Emporium to get some dinner for Dad. Flynn wanted to go back to the Pub, but I told him we will go tomorrow if he is good - what a bad influence he is on me! We caught up with our new friends from Cooper Pedy and Flynn had a lovely time watching Nanny Plomb with Imogen.

Off to bed after a yummy dinner and ready for a busy day tomorrow.
Happy Show Day everyone in Cairns.

Wednesday 15th July

Wednesday 15th July
Flynn slept in until 8.00am and looked a little tired after his late night, however he did not have a headache which is a bonus. We had a cruisy day which started at 11.am with acupuncture and Dr Mozzie and then a meeting with the nutritionist before we had OT. Flynn enjoyed OT with Joon.

Straight after OT we went in the Chamber and watched Chugington and Pepper Pig for an hour. Patte and BJ looked after us. Flynn kept teasing them with his crackers.

Off to the moon!

Flynn took his dad to the pub after the chamber where Flynn checked out the toilet and Dad had a $3 pint of Carlsberg. then we headed off to the Emporium to have a sorbet and get dad some dinner at the chicken place. Back to the hospital, or the hotel as Flynn calls it, for dinner, a skype, a cake and bed.

Tuesday July 15 - Lumbar day

Tuesday July 15 - Lumbar day
We had a bit of computer trouble so Tuesday's blog is a day late. Flynny had a headache all day and we rescheduled some of his therapy while he rested and got ready for stem cell number 4, the third Lumbar Puncture. During acupuncture Flynn had 15 needles in his head and he is happy while it is being done.

Check this out!

Flynn got the IV in his hand at 2.30pm and for the first time he didn't flinch, he must be getting used to the pain. His Lumbar happened at around 5.30pm and he came back to the room still asleep at around 5.45pm. He slept until 7.00pm and woke up wanting dinner and cake.We watched Shrek and Thomas and went to sleep at around 10.30pm

Sleepy Beauty!

Monday 14 July

Monday July 14 
Today we woke at 7.15am amd checked outside to see that it had rained overnight, Flynn said he had a head ache but we ignored it and he ate the leftover pancakes from yesterday.He wasn't keen on the breaky as it was egg and he said he was over eggs. We were scheduled to have PT at 10.00am but before this we were to be interviewed by Bieke reps, Flynn sat in the chair next to me and put his head on me because it was sore so I organised some panadol for him. We got through the interview and cancelled PT because Flynn wasn't up to it. The nurses tucked him into bed and tried to cheer him up.

He's lovin it!

Flynn had a rest and at 1.00pm the film crew wanted more shots of Flynn around the pool area so he went down but didn't last long before his head was sore so we went upstairs to rest before OT at 2.00pm. The film crew wanted footage while at OT and Flynn did some work for them for 20 minutes before he needed another rest before the hyperbaric chamber at 3.15pm.I organised some more panadol before the chamber and Flynn was great in the chamber

.We went out to the Emporium to buy Flynn a book because he has been so good today. Another lumbar tomorrow.