Monday 21 July 2014

Monday July 21 - Stem cells number five.

Monday July 21 - Stem cells number five.
Today we had an early appointment in the hyperbaric chamber at 8.00am today and watched an hour of Pepper Pig on the ipad.  Flynn then reminded me that we didn't cook pancakes yesterday because we went to Dreamworld and we should cook them today. I only let him eat one big one as he had Aquatic therapy at 10.am and if he drank a lot of pool waterlike he normally does, he might spew up pancakes in the pool.
After OT we took Ethan and Trish off to the MBK centre on the trains and got some DVD's and key rings and a special present for Tess and Patto. We had to rush back to the 'hotel' so Flynn could eat before OT at 2.00pm as he is fasting after 2 before his lumbar puncture. 
At OT Flynn was excellent and loved the well organised session with Nicky. 

Flynn did an activity where he had to use an ink stamp on paper which were different animals, he then had to say the specific animal and write it down on paper. I assisted with the spelling. I was impressed with his writing.
 CROCODILE
 SNAIL
PRAWN
We then headed up to our room for the IV line to be put in, Flynn was very brave and was happy until the line stopped working after about 30mins and they had to put another in his opposite hand. He was a little distressed when they pulled the original line out but didn't flinch when they put the second in. 
Cruising in the corridor with the first line in.
He is now looking a little weary 3 hours after the Spinal Tap and has eaten his dinner while lying flat ant watching Franklin and Pepper Pig. Another hour and I'll ask the nurses to take his IV line so he can go to sleep.
Flynn has been a little legend over the past few days and I am so proud of him. 
Blog again tomorrow - love Flynn and Frazer xxxxxooooo

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